All About SCA27A
An education-focused session on SCA27A, an inherited form of ataxia. Readers may be interested in current approaches to recognition, diagnosis […]
Explore support groups, webinars, community events, and research meetings for the cerebellar disorder community. Events are hosted by outside organizations; confirm details with the organizer before attending.
An education-focused session on SCA27A, an inherited form of ataxia. Readers may be interested in current approaches to recognition, diagnosis […]
A free virtual support group facilitated by Kathleen Gingerelli, held Thursdays at 6:30 p.m. New York time. It offers a space to share experiences and support one another. Contact Mount […]
A free virtual support group facilitated by Kathleen Gingerelli, held Thursdays at 6:30 p.m. New York time. It offers a space to share experiences and support one another. Contact Mount […]
A virtual meeting linked to the Boston ataxia support community. Its purpose is social support and exchange of useful experiences, and the online format may allow participation beyond Boston. Check […]
A free virtual support group facilitated by Kathleen Gingerelli, held Thursdays at 6:30 p.m. New York time. It offers a space to share experiences and support one another. Contact Mount […]
An ataxia peer-support meeting specifically welcoming African American participants, offering a community-focused space to discuss experiences, concerns and resources.Who it’s for: African Americans living with ataxia; support networksLocation: Online (international)
A late-December installment of the recurring Ataxia Resources and Discussion meeting. It provides continuity of peer contact during the holiday period and a place to ask about available support information. […]
An early-January session of the same ataxia resource and discussion group. It may be relevant to individuals seeking practical pointers and connection with other families at the beginning of the […]
A supportive webinar for care partners about maintaining personal well-being while caring for someone with ataxia. It addresses an important […]
An international peer-support gathering for men with ataxia, scheduled as part of a recurring series. Conversation is community-oriented rather than a formal clinical lecture. Read the host's description for confidentiality […]
A care-planning session from Barrow Neurological Institute’s ACE program for the ataxia community. It may interest people organizing daily support, planning for future needs or coordinating with relatives and professionals. […]
ICER New England CEPAC public session on comparative evidence for nomlabofusp and omaveloxolone for Friedreich’s ataxia; 21 January 2027. This is not an individual clinical consultation.Who it’s for: Patients, associations, […]