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X-ORIGINAL-URL:https://cerebellumresourcecenter.com
X-WR-CALDESC:Events for The Cerebellum Resource Center
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BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20261210T000000
DTEND;TZID=America/Chicago:20261210T000000
DTSTAMP:20261105T180655Z
CREATED:20261105T180655Z
LAST-MODIFIED:20261105T180655Z
UID:3712-1796860800-1796860800@cerebellumresourcecenter.com
SUMMARY:All About SCA27A
DESCRIPTION:An education-focused session on SCA27A\, an inherited form of ataxia. Readers may be interested in current approaches to recognition\, diagnosis and research directions for this less common condition. Check the announced speaker and agenda to see whether clinical care or emerging treatment research is emphasized. \nWho it’s for: SCA27A families; neurogeneticists; clinicians \nLocation: Online (international)
URL:https://cerebellumresourcecenter.com/event/all-about-sca27a/
CATEGORIES:Education and Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261210T183000
DTEND;TZID=America/New_York:20261210T183000
DTSTAMP:20261105T180655Z
CREATED:20261105T180655Z
LAST-MODIFIED:20261105T180655Z
UID:3714-1796927400-1796927400@cerebellumresourcecenter.com
SUMMARY:Tri State Ataxia Support Group (Virtual)
DESCRIPTION:A free virtual support group facilitated by Kathleen Gingerelli\, held Thursdays at 6:30 p.m. New York time. It offers a space to share experiences and support one another. Contact Mount Sinai for access details. \nWho it’s for: United States For: People with ataxia\, family members\, and caregivers \nLocation: Online
URL:https://cerebellumresourcecenter.com/event/tri-state-ataxia-support-group-virtual-6/
CATEGORIES:Support Groups
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261217T183000
DTEND;TZID=America/New_York:20261217T183000
DTSTAMP:20261105T180709Z
CREATED:20261105T180709Z
LAST-MODIFIED:20261105T180709Z
UID:3717-1797532200-1797532200@cerebellumresourcecenter.com
SUMMARY:Tri State Ataxia Support Group (Virtual)
DESCRIPTION:A free virtual support group facilitated by Kathleen Gingerelli\, held Thursdays at 6:30 p.m. New York time. It offers a space to share experiences and support one another. Contact Mount Sinai for access details. \nWho it’s for: United States For: People with ataxia\, family members\, and caregivers \nLocation: Online
URL:https://cerebellumresourcecenter.com/event/tri-state-ataxia-support-group-virtual-7/
CATEGORIES:Support Groups
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20261219T000000
DTEND;TZID=America/Chicago:20261219T000000
DTSTAMP:20261105T180710Z
CREATED:20261105T180710Z
LAST-MODIFIED:20261105T180710Z
UID:3719-1797638400-1797638400@cerebellumresourcecenter.com
SUMMARY:Boston Ataxia Support Group Meeting
DESCRIPTION:A virtual meeting linked to the Boston ataxia support community. Its purpose is social support and exchange of useful experiences\, and the online format may allow participation beyond Boston. Check the host's guidance for access arrangements and discussion topics. \nWho it’s for: Patients; families; peer-support communities \nLocation: Online\, United States
URL:https://cerebellumresourcecenter.com/event/boston-ataxia-support-group-meeting/
CATEGORIES:Support Groups
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261224T183000
DTEND;TZID=America/New_York:20261224T183000
DTSTAMP:20261105T180725Z
CREATED:20261105T180725Z
LAST-MODIFIED:20261105T180725Z
UID:3723-1798137000-1798137000@cerebellumresourcecenter.com
SUMMARY:Tri State Ataxia Support Group (Virtual)
DESCRIPTION:A free virtual support group facilitated by Kathleen Gingerelli\, held Thursdays at 6:30 p.m. New York time. It offers a space to share experiences and support one another. Contact Mount Sinai for access details. Because this date falls on a holiday\, confirm with Mount Sinai that the meeting is running. \nWho it’s for: United States For: People with ataxia\, family members\, and caregivers \nLocation: Online
URL:https://cerebellumresourcecenter.com/event/tri-state-ataxia-support-group-virtual-8/
CATEGORIES:Support Groups
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20261226T000000
DTEND;TZID=America/Chicago:20261226T000000
DTSTAMP:20261105T180725Z
CREATED:20261105T180725Z
LAST-MODIFIED:20261105T180725Z
UID:3724-1798243200-1798243200@cerebellumresourcecenter.com
SUMMARY:African Americans with Ataxia Support Group
DESCRIPTION:An ataxia peer-support meeting specifically welcoming African American participants\, offering a community-focused space to discuss experiences\, concerns and resources. \nWho it’s for: African Americans living with ataxia; support networks \nLocation: Online (international)
URL:https://cerebellumresourcecenter.com/event/african-americans-with-ataxia-support-group/
CATEGORIES:Support Groups
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261230T133000
DTEND;TZID=America/New_York:20261230T133000
DTSTAMP:20261105T180725Z
CREATED:20261105T180725Z
LAST-MODIFIED:20261105T180725Z
UID:3725-1798637400-1798637400@cerebellumresourcecenter.com
SUMMARY:Ataxia Resources and Discussion Support Group
DESCRIPTION:A late-December installment of the recurring Ataxia Resources and Discussion meeting. It provides continuity of peer contact during the holiday period and a place to ask about available support information. It is a community meeting\, not a scientific symposium. \nWho it’s for: People with ataxia; carers; support-group members \nLocation: Online (international)
URL:https://cerebellumresourcecenter.com/event/ataxia-resources-and-discussion-support-group-4/
CATEGORIES:Support Groups
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20270106T133000
DTEND;TZID=America/New_York:20270106T133000
DTSTAMP:20261105T180726Z
CREATED:20261105T180726Z
LAST-MODIFIED:20261105T180726Z
UID:3726-1799242200-1799242200@cerebellumresourcecenter.com
SUMMARY:Ataxia Resources and Discussion Support Group
DESCRIPTION:An early-January session of the same ataxia resource and discussion group. It may be relevant to individuals seeking practical pointers and connection with other families at the beginning of the year. \nWho it’s for: People with ataxia; families; new members \nLocation: Online (international)
URL:https://cerebellumresourcecenter.com/event/ataxia-resources-and-discussion-support-group-5/
CATEGORIES:Support Groups
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20270111T000000
DTEND;TZID=America/Chicago:20270111T000000
DTSTAMP:20261105T180739Z
CREATED:20261105T180739Z
LAST-MODIFIED:20261105T180739Z
UID:3728-1799625600-1799625600@cerebellumresourcecenter.com
SUMMARY:How to Not Lose Yourself When Caring for Others
DESCRIPTION:A supportive webinar for care partners about maintaining personal well-being while caring for someone with ataxia. It addresses an important but frequently overlooked aspect of long-term neurological conditions. Family members who feel stretched by caregiving demands may find the discussion particularly relevant. \nWho it’s for: Carers; spouses; relatives; community workers \nLocation: Online (international)
URL:https://cerebellumresourcecenter.com/event/how-to-not-lose-yourself-when-caring-for-others/
CATEGORIES:Education and Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20270112T000000
DTEND;TZID=America/Chicago:20270112T000000
DTSTAMP:20261105T180740Z
CREATED:20261105T180740Z
LAST-MODIFIED:20261105T180740Z
UID:3729-1799712000-1799712000@cerebellumresourcecenter.com
SUMMARY:Men with Ataxia: International Support Group
DESCRIPTION:An international peer-support gathering for men with ataxia\, scheduled as part of a recurring series. Conversation is community-oriented rather than a formal clinical lecture. Read the host's description for confidentiality expectations and joining instructions. \nWho it’s for: Men with ataxia; peers seeking connection \nLocation: Online (international)
URL:https://cerebellumresourcecenter.com/event/men-with-ataxia-international-support-group/
CATEGORIES:Support Groups
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20270120T000000
DTEND;TZID=America/Chicago:20270120T000000
DTSTAMP:20261105T180754Z
CREATED:20261105T180754Z
LAST-MODIFIED:20261105T180754Z
UID:3732-1800403200-1800403200@cerebellumresourcecenter.com
SUMMARY:Care Planning Sessions by Barrow Neurological Institute ACE
DESCRIPTION:A care-planning session from Barrow Neurological Institute’s ACE program for the ataxia community. It may interest people organizing daily support\, planning for future needs or coordinating with relatives and professionals. Some information may be specific to US services. \nWho it’s for: Patients; carers; families planning longer-term care \nLocation: Online (international)
URL:https://cerebellumresourcecenter.com/event/care-planning-sessions-by-barrow-neurological-institute-ace/
CATEGORIES:Education and Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20270121T000000
DTEND;TZID=America/Chicago:20270121T000000
DTSTAMP:20261105T180755Z
CREATED:20261105T180755Z
LAST-MODIFIED:20261105T180755Z
UID:3733-1800489600-1800489600@cerebellumresourcecenter.com
SUMMARY:ICER New England CEPAC: Friedreich’s Ataxia
DESCRIPTION:ICER New England CEPAC public session on comparative evidence for nomlabofusp and omaveloxolone for Friedreich’s ataxia; 21 January 2027. This is not an individual clinical consultation. \nWho it’s for: Patients\, associations\, clinicians and policymakers \nLocation: Online\, United States
URL:https://cerebellumresourcecenter.com/event/icer-new-england-cepac-friedreichs-ataxia/
CATEGORIES:Education and Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20270204T000000
DTEND;TZID=America/Chicago:20270204T000000
DTSTAMP:20261105T180756Z
CREATED:20261105T180756Z
LAST-MODIFIED:20261105T180756Z
UID:3735-1801699200-1801699200@cerebellumresourcecenter.com
SUMMARY:From Stress to Self-Expression: Creative Wellness
DESCRIPTION:A creative-wellness session blending self-expression and stress-management themes for the ataxia community. This is designed around coping and well-being\, not diagnostics or pharmacological treatment. Readers interested in complementary community support and creative activities may find it worthwhile. \nWho it’s for: Patients; family members; well-being groups \nLocation: Online (international)
URL:https://cerebellumresourcecenter.com/event/from-stress-to-self-expression-creative-wellness/
CATEGORIES:Exercise and Well-Being
END:VEVENT
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