An inclusive community gathering hosted by the DHAG for people with ataxia and their families to share experiences and connect. […]
Explore support groups, webinars, community events, and research meetings for the cerebellar disorder community. Events are hosted by outside organizations; confirm details with the organizer before attending.
In Person
Events
Calendar of Events
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4 events,Cycling and fundraising event for Friedreich’s ataxia research at Lewisville Railroad Park, November 7, 2026, 08:30–13:00 local time. Check FARA […] An in-person support-group gathering at Picnic Hill Orchard, 10500 Yankee Hill Rd, Lincoln, Nebraska. Includes apple tasting, an orchard walk, […] |
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1 event,A specialist research symposium on ARSACS, a hereditary condition associated with ataxia and neurological impairment. Announced subjects include biomarkers, experimental disease models, neurodegeneration and therapeutic approaches. Its technical content will […] |
3 events,The flagship international ataxia research congress brings together laboratory scientists, clinicians, industry, advocacy groups and other stakeholders. The program spans […] Reza Shadmehr (Johns Hopkins University) speaks on neural computations of the cerebellum as part of the University of Chicago Neuroscience […] An ICAR clinical grand-rounds workshop built around 11 ataxia patient cases. Experts will discuss diagnostic reasoning, underlying mechanisms and treatment […] |
3 events,This ICAR workshop focuses on genomic technologies used to investigate inherited ataxias. Such methods can help interpret challenging variants and […] An interactive ICAR workshop about using clinical rating tools reliably in ataxia research. Topics include SARA, SARAhome, CCAS and mFARS, […] An ICAR workshop on how patient experience should influence research decisions and treatment development. Topics include research priorities, trial design, […] |
4 events,Kavishini Apasamy presents research on functional connectivity between the hippocampus and cerebellum across the adult lifespan. It may interest readers […] A workshop on sharing research resources across the international ataxia field, including clinical data and biological samples. Better harmonization can […] An ICAR discussion of N-of-1 and N-of-few approaches, where investigations or treatments are tailored to very small patient populations. The […] |
2 events,Friedreich’s Ataxia Research Alliance (FARA) satellite meeting at the International Congress for Ataxia Research, focused on work presented by junior […] An ICAR workshop on using induced pluripotent stem cells (iPSCs) and related models to study ataxias. Patient-derived cells and organoid […] |
1 event,Community gaming fundraiser for Friedreich’s ataxia research at Natural Twenty Games, 4136 E Sunset Road, Henderson, Nevada, on November 14, […] |
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1 event,In-person self-help meeting and exchange of experiences within the ataxia community.Who it’s for: Patients; loved onesLocation: Halle (Saale), Germany |
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1 event,A French-language clinical session whose title translates as 'Approach to a Patient with Ataxia,' included within the wider NEUROPARK DAY […] |
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2 events,The 19th Dîner des Producteurs is a charity dinner in Montréal supporting the Ataxia Charlevoix-Saguenay Foundation and ARSACS research. It […] Lau Møller Andersen (Aarhus University) will discuss magnetoencephalography approaches to studying the cerebellum at the University of TübingenWho it’s for: […] |
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1 event,A participatory science workshop that uses an interactive, ataxia-themed maze to explain Friedreich’s ataxia. It suits anyone interested in public […] |
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2 events,A second date for the DHAG’s inclusive community gathering in Bonn. Held in German.Who it’s for: People with ataxia; familiesLocation: […] A self-help group meeting with activities, hosted by the regional DHAG group. Contact the host for the location. Held in […] |
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