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ICAR: The Essential Role of Patient Voice in Ataxia Research

November 11 @ 4:30 pm

An ICAR workshop on how patient experience should influence research decisions and treatment development. Topics include research priorities, trial design, outcomes that matter to patients and engagement with regulators or companies. Suitable for both scientists and advocates wanting stronger patient–researcher collaboration.

Who it’s for: Researchers; patient advocates; industry; regulators

Location: Atlanta, United States

Details