Family Conversations Around Advanced-Care Planning
A discussion about planning for future care needs and talking with family about preferences, support and medical decisions. It may […]
Explore support groups, webinars, community events, and research meetings for the cerebellar disorder community. Events are hosted by outside organizations; confirm details with the organizer before attending.
A discussion about planning for future care needs and talking with family about preferences, support and medical decisions. It may […]
An educational webinar focused on spinocerebellar ataxia type 21 (SCA21). It is designed to help audiences understand what distinguishes this […]
Ataxia UK's All About Ataxia event provides information and opportunities for interaction for people affected by ataxia. It is aimed […]
An Ataxia UK virtual session on care needs, everyday support and practical independence. It may interest patients and carers thinking […]
An education-focused session on SCA27A, an inherited form of ataxia. Readers may be interested in current approaches to recognition, diagnosis […]
A supportive webinar for care partners about maintaining personal well-being while caring for someone with ataxia. It addresses an important but frequently overlooked aspect of long-term neurological conditions. Family members […]
A care-planning session from Barrow Neurological Institute’s ACE program for the ataxia community. It may interest people organizing daily support, planning for future needs or coordinating with relatives and professionals. […]
ICER New England CEPAC public session on comparative evidence for nomlabofusp and omaveloxolone for Friedreich’s ataxia; 21 January 2027. This is not an individual clinical consultation.Who it’s for: Patients, associations, […]
National Ataxia Foundation Annual Ataxia Conference, April 1–3, 2027, at Planet Hollywood in Las Vegas, Nevada. Patient, caregiver, clinician and research community gathering; consult NAF for registration and the detailed […]