Ask the Ataxia Expert — Dr. Susan Perlman
Question-and-answer session with Dr. Susan Perlman of UCLA, scheduled for 13:00–14:00 US Central Time.Who it’s for: People with ataxia, family […]
12 events found.
Explore support groups, webinars, community events, and research meetings for the cerebellar disorder community. Events are hosted by outside organizations; confirm details with the organizer before attending.
Education and Webinars
Events
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All About Gathering Family Health History
A practical webinar explaining why family health history matters in genetic and neurological conditions. Attendees may learn which family details […]
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Let’s Talk: Pursuing Intimate Relationships
A conversation about pursuing intimate relationships while living with ataxia. It addresses an important part of everyday life that is […]
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Online-Vortrag vom Medizinischen Beirat (Online talk from the medical advisory board)
An online talk from the medical advisory board of the DHAG (German Heredo-Ataxia Society). Topic to be announced. Held in […]
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Family Conversations Around Advanced-Care Planning
A discussion about planning for future care needs and talking with family about preferences, support and medical decisions. It may […]
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All About SCA21
An educational webinar focused on spinocerebellar ataxia type 21 (SCA21). It is designed to help audiences understand what distinguishes this […]
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All About Ataxia — Ataxia UK
Ataxia UK's All About Ataxia event provides information and opportunities for interaction for people affected by ataxia. It is aimed […]
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AAA+ Care Needs — Ataxia UK
An Ataxia UK virtual session on care needs, everyday support and practical independence. It may interest patients and carers thinking […]
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All About SCA27A
An education-focused session on SCA27A, an inherited form of ataxia. Readers may be interested in current approaches to recognition, diagnosis […]
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How to Not Lose Yourself When Caring for Others
A supportive webinar for care partners about maintaining personal well-being while caring for someone with ataxia. It addresses an important […]
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Care Planning Sessions by Barrow Neurological Institute ACE
A care-planning session from Barrow Neurological Institute’s ACE program for the ataxia community. It may interest people organizing daily support, […]
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ICER New England CEPAC: Friedreich’s Ataxia
ICER New England CEPAC public session on comparative evidence for nomlabofusp and omaveloxolone for Friedreich’s ataxia; 21 January 2027. This […]