Explore support groups, webinars, community events, and research meetings for the cerebellar disorder community. Events are hosted by outside organizations; confirm details with the organizer before attending.

Education and Webinars

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  • Ask the Ataxia Expert — Dr. Susan Perlman

    Question-and-answer session with Dr. Susan Perlman of UCLA, scheduled for 13:00–14:00 US Central Time.Who it’s for: People with ataxia, family members, and caregiversLocation: Online

  • All About Gathering Family Health History

    A practical webinar explaining why family health history matters in genetic and neurological conditions. Attendees may learn which family details are worth recording before a medical appointment and how these […]

  • Let’s Talk: Pursuing Intimate Relationships

    A conversation about pursuing intimate relationships while living with ataxia. It addresses an important part of everyday life that is not usually covered in biomedical congresses. Readers looking for social, […]

  • Family Conversations Around Advanced-Care Planning

    A discussion about planning for future care needs and talking with family about preferences, support and medical decisions. It may help participants begin conversations that can otherwise feel difficult or […]

  • All About SCA21

    An educational webinar focused on spinocerebellar ataxia type 21 (SCA21). It is designed to help audiences understand what distinguishes this rare genetic ataxia, including diagnosis and developments in clinical or […]

  • All About Ataxia — Ataxia UK

    Ataxia UK's All About Ataxia event provides information and opportunities for interaction for people affected by ataxia. It is aimed […]

  • AAA+ Care Needs — Ataxia UK

    An Ataxia UK virtual session on care needs, everyday support and practical independence. It may interest patients and carers thinking […]

  • All About SCA27A

    An education-focused session on SCA27A, an inherited form of ataxia. Readers may be interested in current approaches to recognition, diagnosis and research directions for this less common condition. Check the […]

  • Care Planning Sessions by Barrow Neurological Institute ACE

    A care-planning session from Barrow Neurological Institute’s ACE program for the ataxia community. It may interest people organizing daily support, planning for future needs or coordinating with relatives and professionals. […]