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X-WR-CALNAME:The Cerebellum Resource Center
X-ORIGINAL-URL:https://cerebellumresourcecenter.com
X-WR-CALDESC:Events for The Cerebellum Resource Center
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BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20261117T130000
DTEND;TZID=America/Chicago:20261117T130000
DTSTAMP:20261105T180525Z
CREATED:20261105T180525Z
LAST-MODIFIED:20261105T180525Z
UID:3683-1794920400-1794920400@cerebellumresourcecenter.com
SUMMARY:Ask the Ataxia Expert — Dr. Susan Perlman
DESCRIPTION:Question-and-answer session with Dr. Susan Perlman of UCLA\, scheduled for 13:00–14:00 US Central Time. \nWho it’s for: People with ataxia\, family members\, and caregivers \nLocation: Online
URL:https://cerebellumresourcecenter.com/event/ask-the-ataxia-expert-dr-susan-perlman/
CATEGORIES:Education and Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20261118T000000
DTEND;TZID=America/Chicago:20261118T000000
DTSTAMP:20261105T180526Z
CREATED:20261105T180526Z
LAST-MODIFIED:20261105T180526Z
UID:3685-1794960000-1794960000@cerebellumresourcecenter.com
SUMMARY:All About Gathering Family Health History
DESCRIPTION:A practical webinar explaining why family health history matters in genetic and neurological conditions. Attendees may learn which family details are worth recording before a medical appointment and how these can inform discussions of inherited ataxia. The session is educational; genetic testing decisions belong with qualified professionals. \nWho it’s for: Families; patients considering genetics consultations \nLocation: Online (international)
URL:https://cerebellumresourcecenter.com/event/all-about-gathering-family-health-history/
CATEGORIES:Education and Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20261118T000000
DTEND;TZID=America/Chicago:20261118T000000
DTSTAMP:20261105T180539Z
CREATED:20261105T180539Z
LAST-MODIFIED:20261105T180539Z
UID:3688-1794960000-1794960000@cerebellumresourcecenter.com
SUMMARY:Let’s Talk: Pursuing Intimate Relationships
DESCRIPTION:A conversation about pursuing intimate relationships while living with ataxia. It addresses an important part of everyday life that is not usually covered in biomedical congresses. Readers looking for social\, emotional or relationship-focused community discussion may find it especially relevant. \nWho it’s for: Adults with ataxia; partners; peer-support audiences \nLocation: Online (international)
URL:https://cerebellumresourcecenter.com/event/lets-talk-pursuing-intimate-relationships/
CATEGORIES:Education and Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20261118T000000
DTEND;TZID=America/Chicago:20261118T000000
DTSTAMP:20261105T180540Z
CREATED:20261105T180540Z
LAST-MODIFIED:20261105T180540Z
UID:3690-1794960000-1794960000@cerebellumresourcecenter.com
SUMMARY:Online-Vortrag vom Medizinischen Beirat (Online talk from the medical advisory board)
DESCRIPTION:An online talk from the medical advisory board of the DHAG (German Heredo-Ataxia Society). Topic to be announced. Held in German. \nWho it’s for: Patients; family members; healthcare professionals \nLocation: Online\, Germany
URL:https://cerebellumresourcecenter.com/event/online-vortrag-vom-medizinischen-beirat-online-talk-from-the-medical-advisory-board/
CATEGORIES:Education and Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20261119T000000
DTEND;TZID=America/Chicago:20261119T000000
DTSTAMP:20261105T180555Z
CREATED:20261105T180555Z
LAST-MODIFIED:20261105T180555Z
UID:3693-1795046400-1795046400@cerebellumresourcecenter.com
SUMMARY:Family Conversations Around Advanced-Care Planning
DESCRIPTION:A discussion about planning for future care needs and talking with family about preferences\, support and medical decisions. It may help participants begin conversations that can otherwise feel difficult or overwhelming. It provides guidance rather than individualized legal or medical advice. \nWho it’s for: Patients; carers; family decision-makers \nLocation: Online (international)
URL:https://cerebellumresourcecenter.com/event/family-conversations-around-advanced-care-planning/
CATEGORIES:Education and Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20261123T000000
DTEND;TZID=America/Chicago:20261123T000000
DTSTAMP:20261105T180556Z
CREATED:20261105T180556Z
LAST-MODIFIED:20261105T180556Z
UID:3696-1795392000-1795392000@cerebellumresourcecenter.com
SUMMARY:All About SCA21
DESCRIPTION:An educational webinar focused on spinocerebellar ataxia type 21 (SCA21). It is designed to help audiences understand what distinguishes this rare genetic ataxia\, including diagnosis and developments in clinical or scientific knowledge. The detailed agenda and speakers should be checked with the organizer. \nWho it’s for: People affected by SCA21; clinicians; families \nLocation: Online (international)
URL:https://cerebellumresourcecenter.com/event/all-about-sca21/
CATEGORIES:Education and Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20261126T100000
DTEND;TZID=Europe/London:20261126T100000
DTSTAMP:20261105T180609Z
CREATED:20261105T180609Z
LAST-MODIFIED:20261105T180609Z
UID:3698-1795687200-1795687200@cerebellumresourcecenter.com
SUMMARY:All About Ataxia — Ataxia UK
DESCRIPTION:Ataxia UK's All About Ataxia event provides information and opportunities for interaction for people affected by ataxia. It is aimed more at understanding the condition and available support than presenting technical laboratory results. Check the organizer's site for speakers and registration details. \nWho it’s for: People with ataxia; families; newly diagnosed audiences \nLocation: Online\, United Kingdom
URL:https://cerebellumresourcecenter.com/event/all-about-ataxia-ataxia-uk/
CATEGORIES:Education and Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20261127T000000
DTEND;TZID=America/Chicago:20261127T000000
DTSTAMP:20261105T180610Z
CREATED:20261105T180610Z
LAST-MODIFIED:20261105T180610Z
UID:3701-1795737600-1795737600@cerebellumresourcecenter.com
SUMMARY:AAA+ Care Needs — Ataxia UK
DESCRIPTION:An Ataxia UK virtual session on care needs\, everyday support and practical independence. It may interest patients and carers thinking about assistance\, services and daily-living adjustments. \nWho it’s for: Patients; carers; social-care and support audiences \nLocation: Online\, United Kingdom
URL:https://cerebellumresourcecenter.com/event/aaa-care-needs-ataxia-uk/
CATEGORIES:Education and Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20261210T000000
DTEND;TZID=America/Chicago:20261210T000000
DTSTAMP:20261105T180655Z
CREATED:20261105T180655Z
LAST-MODIFIED:20261105T180655Z
UID:3712-1796860800-1796860800@cerebellumresourcecenter.com
SUMMARY:All About SCA27A
DESCRIPTION:An education-focused session on SCA27A\, an inherited form of ataxia. Readers may be interested in current approaches to recognition\, diagnosis and research directions for this less common condition. Check the announced speaker and agenda to see whether clinical care or emerging treatment research is emphasized. \nWho it’s for: SCA27A families; neurogeneticists; clinicians \nLocation: Online (international)
URL:https://cerebellumresourcecenter.com/event/all-about-sca27a/
CATEGORIES:Education and Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20270111T000000
DTEND;TZID=America/Chicago:20270111T000000
DTSTAMP:20261105T180739Z
CREATED:20261105T180739Z
LAST-MODIFIED:20261105T180739Z
UID:3728-1799625600-1799625600@cerebellumresourcecenter.com
SUMMARY:How to Not Lose Yourself When Caring for Others
DESCRIPTION:A supportive webinar for care partners about maintaining personal well-being while caring for someone with ataxia. It addresses an important but frequently overlooked aspect of long-term neurological conditions. Family members who feel stretched by caregiving demands may find the discussion particularly relevant. \nWho it’s for: Carers; spouses; relatives; community workers \nLocation: Online (international)
URL:https://cerebellumresourcecenter.com/event/how-to-not-lose-yourself-when-caring-for-others/
CATEGORIES:Education and Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20270120T000000
DTEND;TZID=America/Chicago:20270120T000000
DTSTAMP:20261105T180754Z
CREATED:20261105T180754Z
LAST-MODIFIED:20261105T180754Z
UID:3732-1800403200-1800403200@cerebellumresourcecenter.com
SUMMARY:Care Planning Sessions by Barrow Neurological Institute ACE
DESCRIPTION:A care-planning session from Barrow Neurological Institute’s ACE program for the ataxia community. It may interest people organizing daily support\, planning for future needs or coordinating with relatives and professionals. Some information may be specific to US services. \nWho it’s for: Patients; carers; families planning longer-term care \nLocation: Online (international)
URL:https://cerebellumresourcecenter.com/event/care-planning-sessions-by-barrow-neurological-institute-ace/
CATEGORIES:Education and Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20270121T000000
DTEND;TZID=America/Chicago:20270121T000000
DTSTAMP:20261105T180755Z
CREATED:20261105T180755Z
LAST-MODIFIED:20261105T180755Z
UID:3733-1800489600-1800489600@cerebellumresourcecenter.com
SUMMARY:ICER New England CEPAC: Friedreich’s Ataxia
DESCRIPTION:ICER New England CEPAC public session on comparative evidence for nomlabofusp and omaveloxolone for Friedreich’s ataxia; 21 January 2027. This is not an individual clinical consultation. \nWho it’s for: Patients\, associations\, clinicians and policymakers \nLocation: Online\, United States
URL:https://cerebellumresourcecenter.com/event/icer-new-england-cepac-friedreichs-ataxia/
CATEGORIES:Education and Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20270401T000000
DTEND;TZID=America/Chicago:20270401T000000
DTSTAMP:20261105T180840Z
CREATED:20261105T180840Z
LAST-MODIFIED:20261105T180840Z
UID:3749-1806537600-1806537600@cerebellumresourcecenter.com
SUMMARY:Annual Ataxia Conference 2027
DESCRIPTION:National Ataxia Foundation Annual Ataxia Conference\, April 1–3\, 2027\, at Planet Hollywood in Las Vegas\, Nevada. Patient\, caregiver\, clinician and research community gathering; consult NAF for registration and the detailed program. \nWho it’s for: Patients; families; clinicians; charities; researchers \nLocation: Las Vegas\, United States
URL:https://cerebellumresourcecenter.com/event/annual-ataxia-conference-2027/
CATEGORIES:Education and Webinars
END:VEVENT
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