A creative-wellness session blending self-expression and stress-management themes for the ataxia community. This is designed around coping and well-being, not diagnostics or pharmacological treatment. Readers interested in complementary community support […]
ICER New England CEPAC public session on comparative evidence for nomlabofusp and omaveloxolone for Friedreich’s ataxia; 21 January 2027. This is not an individual clinical consultation. Who it’s for: Patients,
A care-planning session from Barrow Neurological Institute’s ACE program for the ataxia community. It may interest people organizing daily support, planning for future needs or coordinating with relatives and professionals.
An international peer-support gathering for men with ataxia, scheduled as part of a recurring series. Conversation is community-oriented rather than a formal clinical lecture. Read the host's description for confidentiality
A supportive webinar for care partners about maintaining personal well-being while caring for someone with ataxia. It addresses an important but frequently overlooked aspect of long-term neurological conditions. Family members
An early-January session of the same ataxia resource and discussion group. It may be relevant to individuals seeking practical pointers and connection with other families at the beginning of the
A free virtual support group facilitated by Kathleen Gingerelli, held Thursdays at 6:30 p.m. New York time. It offers a space to share experiences and support one another. Contact Mount
An ataxia peer-support meeting specifically welcoming African American participants, offering a community-focused space to discuss experiences, concerns and resources. Who it’s for: African Americans living with ataxia; support networks Location:
A late-December installment of the recurring Ataxia Resources and Discussion meeting. It provides continuity of peer contact during the holiday period and a place to ask about available support information.
A virtual meeting linked to the Boston ataxia support community. Its purpose is social support and exchange of useful experiences, and the online format may allow participation beyond Boston. Check
