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X-ORIGINAL-URL:https://cerebellumresourcecenter.com
X-WR-CALDESC:Events for The Cerebellum Resource Center
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BEGIN:DAYLIGHT
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BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20261111T000000
DTEND;TZID=America/Chicago:20261111T000000
DTSTAMP:20261105T180455Z
CREATED:20261105T180455Z
LAST-MODIFIED:20261105T180455Z
UID:3674-1794355200-1794355200@cerebellumresourcecenter.com
SUMMARY:Let’s Move Exercise Program
DESCRIPTION:Another date in the National Ataxia Foundation's movement and well-being series. It is intended to support participation in guided physical activity\, with details of the specific exercise routine provided by the organizer. \nWho it’s for: People with ataxia; rehabilitation audiences \nLocation: Online (international)
URL:https://cerebellumresourcecenter.com/event/lets-move-exercise-program/
CATEGORIES:Exercise and Well-Being
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261111T133000
DTEND;TZID=America/New_York:20261111T133000
DTSTAMP:20261105T180440Z
CREATED:20261105T180440Z
LAST-MODIFIED:20261105T180440Z
UID:3669-1794403800-1794403800@cerebellumresourcecenter.com
SUMMARY:Ataxia Resources and Discussion Support Group
DESCRIPTION:A recurring online support group focused on sharing resources and discussing day-to-day concerns. Participants can benefit from peer knowledge\, community contacts and helpful information sources. It is not a substitute for medical advice. \nWho it’s for: Patients; relatives; newly diagnosed people \nLocation: Online (international)
URL:https://cerebellumresourcecenter.com/event/ataxia-resources-and-discussion-support-group/
CATEGORIES:Support Groups
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261112T183000
DTEND;TZID=America/New_York:20261112T183000
DTSTAMP:20261105T180510Z
CREATED:20261105T180510Z
LAST-MODIFIED:20261105T180510Z
UID:3679-1794508200-1794508200@cerebellumresourcecenter.com
SUMMARY:Tri State Ataxia Support Group (Virtual)
DESCRIPTION:A free virtual support group facilitated by Kathleen Gingerelli\, held Thursdays at 6:30 p.m. New York time. It offers a space to share experiences and support one another. Contact Mount Sinai for access details. \nWho it’s for: United States For: People with ataxia\, family members\, and caregivers \nLocation: Online
URL:https://cerebellumresourcecenter.com/event/tri-state-ataxia-support-group-virtual-2/
CATEGORIES:Support Groups
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20261117T130000
DTEND;TZID=America/Chicago:20261117T130000
DTSTAMP:20261105T180525Z
CREATED:20261105T180525Z
LAST-MODIFIED:20261105T180525Z
UID:3683-1794920400-1794920400@cerebellumresourcecenter.com
SUMMARY:Ask the Ataxia Expert — Dr. Susan Perlman
DESCRIPTION:Question-and-answer session with Dr. Susan Perlman of UCLA\, scheduled for 13:00–14:00 US Central Time. \nWho it’s for: People with ataxia\, family members\, and caregivers \nLocation: Online
URL:https://cerebellumresourcecenter.com/event/ask-the-ataxia-expert-dr-susan-perlman/
CATEGORIES:Education and Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20261118T000000
DTEND;TZID=America/Chicago:20261118T000000
DTSTAMP:20261105T180525Z
CREATED:20261105T180525Z
LAST-MODIFIED:20261105T180525Z
UID:3684-1794960000-1794960000@cerebellumresourcecenter.com
SUMMARY:18–24 with Ataxia Support Group
DESCRIPTION:An online support meeting specifically for young adults aged 18 to 24 who live with ataxia. Topics may include independence\, education\, work\, relationships and the challenges of navigating a rare condition at this life stage. Exact discussion themes depend on attendees and facilitators. \nWho it’s for: Young adults with ataxia (18–24) \nLocation: Online (international)
URL:https://cerebellumresourcecenter.com/event/18-24-with-ataxia-support-group/
CATEGORIES:Support Groups
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20261118T000000
DTEND;TZID=America/Chicago:20261118T000000
DTSTAMP:20261105T180526Z
CREATED:20261105T180526Z
LAST-MODIFIED:20261105T180526Z
UID:3685-1794960000-1794960000@cerebellumresourcecenter.com
SUMMARY:All About Gathering Family Health History
DESCRIPTION:A practical webinar explaining why family health history matters in genetic and neurological conditions. Attendees may learn which family details are worth recording before a medical appointment and how these can inform discussions of inherited ataxia. The session is educational; genetic testing decisions belong with qualified professionals. \nWho it’s for: Families; patients considering genetics consultations \nLocation: Online (international)
URL:https://cerebellumresourcecenter.com/event/all-about-gathering-family-health-history/
CATEGORIES:Education and Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20261118T000000
DTEND;TZID=America/Chicago:20261118T000000
DTSTAMP:20261105T180539Z
CREATED:20261105T180539Z
LAST-MODIFIED:20261105T180539Z
UID:3687-1794960000-1794960000@cerebellumresourcecenter.com
SUMMARY:Let’s Move Exercise Program
DESCRIPTION:A further installment of the recurring Let's Move program\, oriented toward exercise and well-being in the ataxia community. The exact set of movements can vary\, so consult the host for accessibility\, difficulty level\, registration and any required equipment. \nWho it’s for: People living with ataxia; rehabilitation participants \nLocation: Online (international)
URL:https://cerebellumresourcecenter.com/event/lets-move-exercise-program-2/
CATEGORIES:Exercise and Well-Being
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20261118T000000
DTEND;TZID=America/Chicago:20261118T000000
DTSTAMP:20261105T180539Z
CREATED:20261105T180539Z
LAST-MODIFIED:20261105T180539Z
UID:3688-1794960000-1794960000@cerebellumresourcecenter.com
SUMMARY:Let’s Talk: Pursuing Intimate Relationships
DESCRIPTION:A conversation about pursuing intimate relationships while living with ataxia. It addresses an important part of everyday life that is not usually covered in biomedical congresses. Readers looking for social\, emotional or relationship-focused community discussion may find it especially relevant. \nWho it’s for: Adults with ataxia; partners; peer-support audiences \nLocation: Online (international)
URL:https://cerebellumresourcecenter.com/event/lets-talk-pursuing-intimate-relationships/
CATEGORIES:Education and Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20261118T000000
DTEND;TZID=America/Chicago:20261118T000000
DTSTAMP:20261105T180540Z
CREATED:20261105T180540Z
LAST-MODIFIED:20261105T180540Z
UID:3690-1794960000-1794960000@cerebellumresourcecenter.com
SUMMARY:Online-Vortrag vom Medizinischen Beirat (Online talk from the medical advisory board)
DESCRIPTION:An online talk from the medical advisory board of the DHAG (German Heredo-Ataxia Society). Topic to be announced. Held in German. \nWho it’s for: Patients; family members; healthcare professionals \nLocation: Online\, Germany
URL:https://cerebellumresourcecenter.com/event/online-vortrag-vom-medizinischen-beirat-online-talk-from-the-medical-advisory-board/
CATEGORIES:Education and Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261118T133000
DTEND;TZID=America/New_York:20261118T133000
DTSTAMP:20261105T180526Z
CREATED:20261105T180526Z
LAST-MODIFIED:20261105T180526Z
UID:3686-1795008600-1795008600@cerebellumresourcecenter.com
SUMMARY:Ataxia Resources and Discussion Support Group
DESCRIPTION:This installment of the recurring Ataxia Resources and Discussion group offers a place to share experiences and identify practical information sources. It is better suited to people seeking community advice than to those looking for new laboratory discoveries or conference research reports. \nWho it’s for: Patients; carers; people seeking peer support \nLocation: Online (international)
URL:https://cerebellumresourcecenter.com/event/ataxia-resources-and-discussion-support-group-2/
CATEGORIES:Support Groups
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20261119T000000
DTEND;TZID=America/Chicago:20261119T000000
DTSTAMP:20261105T180554Z
CREATED:20261105T180554Z
LAST-MODIFIED:20261105T180554Z
UID:3692-1795046400-1795046400@cerebellumresourcecenter.com
SUMMARY:Chair Yoga & Mobility for Ataxia
DESCRIPTION:An accessible yoga and mobility session using a chair as a support. It is intended to make movement participation more manageable for people facing impaired balance or mobility. The organizer notes participation options for wheelchair users; confirm exact adaptations and speak with a healthcare professional if unsure about safety. \nWho it’s for: People with ataxia; wheelchair users; carers \nLocation: Online (international)
URL:https://cerebellumresourcecenter.com/event/chair-yoga-mobility-for-ataxia/
CATEGORIES:Exercise and Well-Being
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20261119T000000
DTEND;TZID=America/Chicago:20261119T000000
DTSTAMP:20261105T180555Z
CREATED:20261105T180555Z
LAST-MODIFIED:20261105T180555Z
UID:3693-1795046400-1795046400@cerebellumresourcecenter.com
SUMMARY:Family Conversations Around Advanced-Care Planning
DESCRIPTION:A discussion about planning for future care needs and talking with family about preferences\, support and medical decisions. It may help participants begin conversations that can otherwise feel difficult or overwhelming. It provides guidance rather than individualized legal or medical advice. \nWho it’s for: Patients; carers; family decision-makers \nLocation: Online (international)
URL:https://cerebellumresourcecenter.com/event/family-conversations-around-advanced-care-planning/
CATEGORIES:Education and Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261119T183000
DTEND;TZID=America/New_York:20261119T183000
DTSTAMP:20261105T180555Z
CREATED:20261105T180555Z
LAST-MODIFIED:20261105T180555Z
UID:3694-1795113000-1795113000@cerebellumresourcecenter.com
SUMMARY:Tri State Ataxia Support Group (Virtual)
DESCRIPTION:A free virtual support group facilitated by Kathleen Gingerelli\, held Thursdays at 6:30 p.m. New York time. It offers a space to share experiences and support one another. Contact Mount Sinai for access details. \nWho it’s for: United States For: People with ataxia\, family members\, and caregivers \nLocation: Online
URL:https://cerebellumresourcecenter.com/event/tri-state-ataxia-support-group-virtual-3/
CATEGORIES:Support Groups
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20261123T000000
DTEND;TZID=America/Chicago:20261123T000000
DTSTAMP:20261105T180556Z
CREATED:20261105T180556Z
LAST-MODIFIED:20261105T180556Z
UID:3696-1795392000-1795392000@cerebellumresourcecenter.com
SUMMARY:All About SCA21
DESCRIPTION:An educational webinar focused on spinocerebellar ataxia type 21 (SCA21). It is designed to help audiences understand what distinguishes this rare genetic ataxia\, including diagnosis and developments in clinical or scientific knowledge. The detailed agenda and speakers should be checked with the organizer. \nWho it’s for: People affected by SCA21; clinicians; families \nLocation: Online (international)
URL:https://cerebellumresourcecenter.com/event/all-about-sca21/
CATEGORIES:Education and Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20261126T100000
DTEND;TZID=Europe/London:20261126T100000
DTSTAMP:20261105T180609Z
CREATED:20261105T180609Z
LAST-MODIFIED:20261105T180609Z
UID:3698-1795687200-1795687200@cerebellumresourcecenter.com
SUMMARY:All About Ataxia — Ataxia UK
DESCRIPTION:Ataxia UK's All About Ataxia event provides information and opportunities for interaction for people affected by ataxia. It is aimed more at understanding the condition and available support than presenting technical laboratory results. Check the organizer's site for speakers and registration details. \nWho it’s for: People with ataxia; families; newly diagnosed audiences \nLocation: Online\, United Kingdom
URL:https://cerebellumresourcecenter.com/event/all-about-ataxia-ataxia-uk/
CATEGORIES:Education and Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261126T183000
DTEND;TZID=America/New_York:20261126T183000
DTSTAMP:20261105T180610Z
CREATED:20261105T180610Z
LAST-MODIFIED:20261105T180610Z
UID:3700-1795717800-1795717800@cerebellumresourcecenter.com
SUMMARY:Tri State Ataxia Support Group (Virtual)
DESCRIPTION:A free virtual support group facilitated by Kathleen Gingerelli\, held Thursdays at 6:30 p.m. New York time. It offers a space to share experiences and support one another. Contact Mount Sinai for access details. Because this date falls on a holiday\, confirm with Mount Sinai that the meeting is running. \nWho it’s for: United States For: People with ataxia\, family members\, and caregivers \nLocation: Online
URL:https://cerebellumresourcecenter.com/event/tri-state-ataxia-support-group-virtual-4/
CATEGORIES:Support Groups
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20261127T000000
DTEND;TZID=America/Chicago:20261127T000000
DTSTAMP:20261105T180610Z
CREATED:20261105T180610Z
LAST-MODIFIED:20261105T180610Z
UID:3701-1795737600-1795737600@cerebellumresourcecenter.com
SUMMARY:AAA+ Care Needs — Ataxia UK
DESCRIPTION:An Ataxia UK virtual session on care needs\, everyday support and practical independence. It may interest patients and carers thinking about assistance\, services and daily-living adjustments. \nWho it’s for: Patients; carers; social-care and support audiences \nLocation: Online\, United Kingdom
URL:https://cerebellumresourcecenter.com/event/aaa-care-needs-ataxia-uk/
CATEGORIES:Education and Webinars
END:VEVENT
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